tag:blogger.com,1999:blog-47875185966588982772024-03-13T21:47:37.210-07:00CCSVI TREATMENT = for those with MS it's the best optionTreatment for CCSVI is happening NOW all over the World... the stories I've heard of patient improvements are miraculous! Hurry CCSVI treatment! Bring back The Good Times for Me! Make it available to ALL MSers!deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.comBlogger66125tag:blogger.com,1999:blog-4787518596658898277.post-16394270274467654782013-04-09T13:22:00.001-07:002013-04-09T13:22:10.760-07:00I have finished my Acupuncture Therapy. I had treatment during Jan. Feb & March 2013. This therapy energized my legs to lift & bend at the knees. I could not do this before, as the disease takes more and more from me as time goes on. I am now investigating Stem Cell therapy (not available in the US acc to a doctor from Harvard...and destroying the chlamydia & pneumonmia invasion of the bodies of many MS people with an antibiotic regimen....
More to Come SOON...deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-10254338920627308602013-01-11T09:58:00.000-08:002013-01-11T09:58:06.242-08:00<b>I just want to remind all those people that have been diagnosed with Multiple Sclerosis that they should get Tested for C.C.S.V.I. = Chronic Cerebral Spinal Venous Insufficiency. Please check the internet about where places are to get Tested. I thought all the MS Societies would be Promoting this by now... If you are shown to HAVE CCSVI, you should then check where you can be treated. This is Something New for us MSers. It is estimated that about 30% of MSers that are treated for CCSVI have Wonderful results - not a Cure, but many of their symptoms are fixed. Another 30% have Some improvement in symptoms(that was ME--I saw improvements for several weeks that made me feel SO Close to Normal). Another 30% show NO improvements.
The improvements that I think have Stayed with me are: my Cog-Fog is gone and I am thinking like I did 30 years ago before my diagnosis. My bowel and bladder are closer to Normal (under control). I am so glad these improvements have stayed with me. I have been trying ever since Sept. 2010 (my 1st CCSVI treatment) to have similar improvements. <i></i></b>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-77251587629610246242013-01-11T09:43:00.000-08:002013-01-11T09:43:14.709-08:00<b>Well it is a New Year -- the start of 2013. I had Atlas Orthogonal treatments for 4 months. The Atlas Orthogonal therapist, Dr. Heide, showed in an xray she took, that my head was lop-sided and not sitting properly on top of my spine. So she aligned my spine and monitored every week when I came in, to see if my body was keeping the alignmnets. YES, I AM keeping the alignments, but I do Not feel any different physically (yet). So I have Stopped getting Atlas Orthogonal adjustments in Dec. I should now have my Cerebral Spinal fluid start flowing properly, and any blocked veins should have proper Blood Flow now. There is No Set Time about WHEN I should start to feel Good Physical Effects, but I am glad that I got my SPINE aligned.
I am trying New treatments for MS as I learn about them thru the Internet. I have just found out about BRAIN ACUPUNCTURE. This was first discovered as a treatment for MS patient by Dr. Hao (sp.) around 1970. The acupucturist must be properly trained in Brain Acupuncture. I have found a lady here in northern Arizona that is working on me. I have already had ONE treatment. The acupuncturist, Beverly, gave me 2 hours of treatment my first visit. She measured my head (good thing I have short hair)and marked it, asked me if I was afraid of needle sticks. I am NOT because I have put up with Allergy Shots in both arms for many years as I grew up. So I sat in a comfortable LazyBoy recliner with needles in my head. She also did some LASER treatment--looks like a flashlight with light coming out that she pointed up and down my legs. She said this should increase the oxygen to my legs to help me stand and walk. I will give updates and/or concluding comments in the near future. </b>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-55686646969615672292012-09-07T11:12:00.001-07:002012-09-07T11:12:49.363-07:00I have started (in Aug.2012) Atlas Orthogonal treatment with a specially trained chiropractor in Chino Valley, Arizona. There are many stories about this therapy/treatment for people with MS, esp. those who have had injuries that have mis-saligned their spine. This out-of-alignment condition can block the flow of CSF=Cerebral Spinal Fluid thru your body and cause physical problems that have been put into the "bucket" with all your other MS symptoms. I am 58 yrs. old, a college graduate, and I was embarrassed to find out (thru a revealing head/neck x-ray), that my head has been sitting lop-sided on my spine-! I researched and documented all my injuries thru my life (that I could recall). The Wheelchair Kamikazee(Marc), thru pics on his Blog, has shown how a bad alignment in your spine, could prevent blood from flowing in your internal jugular veins. Wow--that is my condition on my left side. I am having my 10th alignment today. I want to straighten my spine, whether it cures my MS symptoms or not. This Has to be a Good Thing to Do--!! deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com1tag:blogger.com,1999:blog-4787518596658898277.post-46122407432853404752012-07-29T13:23:00.003-07:002012-07-29T13:23:59.877-07:00Hurry, Hurry--as you see, I am not typing well, I may FADE into Cyberspace--Help Me Please!!!!!!!!!!!!!!!!deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-57717480760238022572012-07-29T13:19:00.000-07:002012-07-29T13:19:14.436-07:00I'm waiting to find the results of my 1st CCSVI Treatment that I had in Sept 2010 AGAIN--!! I was able to stand an walk up straight SO We;=ll like a NORMAL PERSON--!! My handwriting cam back to NORMAL--what a miracle--!! Why won't the docs Do this venoplasty again? THey say because eacdh treatment damages the lining of the nerves = the lumen...BUT I Want MY LIFE back & I saw it come back for just a few weeks--Waahh!!!!deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-59134490917232410702012-07-29T13:03:00.000-07:002012-07-29T13:19:37.217-07:00deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-49832961565680924542012-07-29T12:53:00.002-07:002012-07-29T12:53:35.389-07:00Waiting only involves the passing of Time and Patience-!deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-63096283347079500462012-04-02T12:02:00.000-07:002012-04-02T12:02:05.002-07:00This is a BIG YEAR...be careful what you READThere are MANY RUMORS and FALSE INFORMATION circulating, be aware-!!deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-90042230010671113902012-03-05T09:59:00.000-08:002012-03-05T09:59:12.937-08:00Keep searchingMy MS Facebook friend, Jan,is physically worse than me and ran out of options. So she researched and travelled from Canada to Excel hosp. in Mexico and had vein by-pass surgery. She is So Brave & had a wonderful team of doctors/surgeons. One of the Surgeons, Dr. Jose Hernandez, has many years experience in the US and Mexico. He is Board Certified in the US and Mexico. He said it was easy to by-pass because he could connect above and below the blockage. I was told my whole Internal Jugular Vein is Occluded, so I would need a Neuro-surgeon to be involved. More news to come, as I Keep Searching...deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-38073198711531695972011-12-24T12:31:00.000-08:002011-12-24T12:31:53.625-08:00My Search Goes OnI was NOT helped by Dr. Stone at Phoenix Mayo. (for more on why I went to Dr, Stone, see <a href="http://msmikejuices@blogspot.com ">msmikejuices@blogspot.com</a>) Dr. Stone did CTs of my head, neck and chest. Dr. Stone said the Blockage in my left Internal Jugular Vein goes up into my brain/cranium. So he said there is Nothing he can do to give me Increased Blood Flow. I tried to get a Consult from a Brain Surgeon and Mayo said NO, they are Done with me. <br />
I have made copies of my CTs and sent them to Dr. Hewett of Pacific Interventionalists, aka Synergy. He called and discussed some things with me, but no immediate help. Dr. Hewett made an observation on one of my CT images, which I have sent via Facebook to Dr. Sal Sclafani in Brooklyn and he is waiting to get the full set of CT images.deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-67854593019240034072011-10-08T11:21:00.000-07:002011-10-08T11:21:49.374-07:00Mayo doc does good things for MS patient<b>Dr. William Stone of AZ Mayo Clinic has done a NEW vein by-pass surgery for an MS patient who did NOT have success with Angioplasty for his CCSVI. MIRACLES NEVER CEASE-! This is what I was going to fly to Italy for...now it so close to home. As my abilities get Worse and Worse, Day by Day, I am anxious to Stop the Progression of this disease, by fixing my veins, Unblocking the Blood Flow, ASAP. I have already experienced my Standing and Walking Improved, as well as hand tremors Faded, so I was able to write and use my hands as a Normal person. I WANT THAT ASAP -- BEFORE I DIE--!!! </b>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-73365492858555026622011-09-29T17:07:00.000-07:002011-09-29T17:07:01.631-07:00Trying a New PathSince I am at the end of the Road with my CCSVI (Chronic Cerebro-Spinal Venous Insufficiency) journey, I am starting a new path. As I said before, the docs (Interventional Radiologists)cannot complete my treatment for CCSVI, as my left IJV (Internal Jugular Vein)is occluded/blocked beyond the ability of the doctors to Correct right now. I have had my right IJV opened and my chest/azygos vein opened and I am enjoying benefits from that. I have been OFF MS drugs since Dec. 2010, my MRI shows No New Lesions and my blood-brain barrier is not being Invaded. I have heard of other MSers that are in this same predicament of Incomplete CCSVI treatment as the Knowledge of what to do is Not Here yet. I couple of MSers in Italy have been helped by a brave vascular surgeon, Doctor Salvatore Spagnolo. This doctor creates an alternate pathway for blood, using a vein from the patient's leg. You can search on the Internet for details. One patient was able to get up out of his wheelchair and walk on his own. Another lady is walking again and she can play the piano, 2 abilities she had lost. I have found an Italian lady surgeon in Scottsdale that knows Dr. Zamboni, does CCSVI treatments, and is intereed in my case. There are many steps that must be taken on this path, so I will be giving you updates as they happen.deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-36827468951408289702011-07-23T11:03:00.000-07:002011-07-23T11:03:21.721-07:00Taking a BreakHi folks, the summer is HOT, so I'm going to take a Break from everything for 2 reasons - ONE is the Unusually HOT and Muggy/Humid summer. TWO is that I have gone as far as I can go with treatments for my CCSVU condition at this time. I have been e-mailing to Dr. Siskin in Albany, a CCSVI expert and S.I.R.(Society for Interventional Radiology)spokesperson. Also e-mailing to Dr. Ponec of Oceanside, associated with Hubbard Foundation, who gives CCSVI treatments at the Del Mar Vein Clinic. Both met at the recent CCSVI Symposium in N.Y. and actually discussed my case - I am honored at that. Both doctors concluded that nothing more can be done for me at this time. I beg to differ, as there is the option of ballooning my collaterals, like the 1st time. I will try to rest and recover, as my body is showing me that it is stressed out. But I will Never Give Up-!deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com2tag:blogger.com,1999:blog-4787518596658898277.post-52008445949590104602011-04-28T23:00:00.000-07:002011-04-28T23:00:39.249-07:00CCSVI Be GONE!My MS body is getting the Best of me--why do we have so many problems? I can't do the simplest things anymore. I struggle to keep walking...I'm waiting for my next treatment to correct this CCSVI birth defect...ugh! Double ugh! It's embarassing what your body will STOP doing Without your permission...deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-77526838942296232582011-04-05T09:41:00.000-07:002011-04-05T09:41:39.887-07:002nd CCSVI treatment<i>Well, my 2nd CCSVI treatment was with Dr. Arata at Pacific Interventionalists. Since I am on Medicare for my disability, I asked them to bill Medicare. Dr. Arata says in Calif. Medicare is managed by Blue Cross and they won't pay. I told them Medicare already paid almost half for my 1st CCSVI procedure which was done at DelMar Vein Clinic, thru Hubbard in San Diego, 6 months ago. Dr. Arata was surprised and said maybe it is because I am from Arizona. So in order to bill Medicare, I had to be admitted as an outpatient to Fountain Valley Hosp.,a few miles away. I'm sorry to say that Dr. Arata could Not reach my left IJV with the wire, so no work done there. But he worked on my right IJV and did something in my Azygos. I am still waiting to get Dr. Arata's report. Overall, my Brain Fog is gone, but I Do NOT have the physical improvements I had after the 1st CCSVI treatment. So I am disappointed, but looking forward to my next treatment. I think this is the Way to Go for me because of the multiple symptom improvements I experienced the 1st time. </i>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-3847669490880615822011-02-15T20:49:00.000-08:002011-02-15T20:49:29.813-08:00CCSVI - I got an E-mail from Dr. SiskinI feel so IMPORTANT -! I got an e-mail from Dr. Gary Siskin in Albany, N.Y. --WOW--!! If you are reading this & don't know how important he is and all the work he is doing with CCSVI, then you need to Google him & find out. I feel so Blessed & Honored that he took the time from his busy schedule to look at my records from my 1st CCSVI treatment and give his opinion if I should do another treatment. And he said "it's worth a second look", esp. since I had NOTHING done to the azygos vein, due to my scoliosis. I am So Happy-! I don't care that I have to wait until November, because I'm already booked to do my next/second CCSVI in March in Costa Mesa with the Pacific IRs. So N.Y. would be a 3rd time, if necessary. I have to keep all the irons in the fire, as MS continues to Progress & I have 30 years of destruction to undo...deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-10031784661487818622011-01-19T15:42:00.000-08:002011-01-19T15:42:53.621-08:00GET BETTER WITH CCSVI TREATMENT-!There is an Important Event in Seattle coming up, the last weekend in January. Doctors will consult with you ONE on ONE about your Status, so bring any tests you've had done with you & Good Luck!! For More Info. see Kathleen Lynch on FACEBOOK...deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-37696990810654241952010-12-28T14:34:00.000-08:002010-12-28T14:34:28.851-08:00Happy HolidaysHappy Holidays and CCSVI Treatment to ALL that Need it -- this will FREE YOU from Many of your MS symptoms. Do you realize you've had this CCSVI condition since your Birth? The Neurologists don't know about this except Dr. Hubbard of San Diego -- ask an Interventional Radiologist who specials in Veins...deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com2tag:blogger.com,1999:blog-4787518596658898277.post-16122924212307526872010-11-23T13:07:00.000-08:002010-11-23T13:07:44.590-08:00CCSVI - Do Ya Wanna Know What it is?<b>This is a lenghty, but informative interview with a neuro for ALL people with MS: http://www.komonews.com/home/video/106175483.html </b>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-61322195426809811952010-11-23T12:42:00.000-08:002010-11-23T12:54:27.484-08:00CCSVI - Liberation and MORE<b><i><i>Hi EVERYONE - ! Sorry I have Not Posted Here for 3 months -- WOW-!! The World has Changed for me since I went to San Diego to get my CCSVI treatment...<b>I came back with a UTI because I have to travel long distances with a catheter. This may have impacted the results of my treatment. I had Good Things Happen but they slowly faded after several weeks. I now have minimal improvements come & go that I did NOT have before. I was told that this has happened to othewrs. Since I've had MS for so long, I'm looking forward to my next CCSVI treatment. Dr. Hubbard had an interview with the Seattle news. Two MS patients from Seattle came to San Diego for CCSVI testing, then treatment at the Del Mar clinic. Because of this, a Seattle newsman gave Dr. Hubbard a lengthy interview on what CCSVI is and how it shows that some of our MS symptoms can be Improved and/or "fixed" because the symptoms are VASCULAR. This is a Breakthru and I believe ALL people with MS should be TESTED for CCSVI. If tests show they have this condition, the treatment is a selection of existing procedures that are Already Being Used for Other People with Other Problems in their veins. </b></i><b></b></i></b>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com1tag:blogger.com,1999:blog-4787518596658898277.post-20275339941562650222010-08-18T12:30:00.000-07:002010-08-18T12:35:05.588-07:00<em>Oh Boy--Oh Boy--Oh Boy-!!! I cannot Wait until I get treated for my clogged/blocked veins--MS symptoms will Improve like NONE of the Drugs ever could do--!! Thirty-three years of Suffering & NOW I have Real Hope-!! I know I won't be 100% free of MS, but ANY IMPOVEMENT will be So Welcomed--!! </em>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-21880402280030670932010-08-07T13:46:00.000-07:002010-08-07T13:52:37.271-07:00More about My Testing for CCSVI<em>Update: I had MRI & MRV testing for blocked/clogged veins on 8/5/10 at Hubbard in San Diego. I'll wait now a couple weeks for test results. Info. is all over the Internet, Facebook, YouTube, etc. from many countries. Wow-!</em>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com1tag:blogger.com,1999:blog-4787518596658898277.post-6737800816719758332010-07-05T17:08:00.000-07:002010-07-05T17:19:28.368-07:00CCSVI More Good News<em>I have been researching CCSVI, where to get tested & get the Liberation Procedure done. Since I live in Arizona, it looks like Clinics of the Heart with Dr. Rafael Moguel in Cabo San Lucas, Mexico will be best for me. Not sure of details yet (cost,etc.) but there was already a trial of 10 MSers & all had successive outcomes. ***Good Luck to All*** </em>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0tag:blogger.com,1999:blog-4787518596658898277.post-18526303469867282512010-07-02T08:41:00.000-07:002010-07-02T08:44:30.647-07:00CCSVI<em><strong>Is this a CURE for MS-?? WOW-!! See the NY Times article. They will start testing in Atlanta on 7/15. Check around you to get Testedto see if you qualify tor this Cure. YAAYY--!!!!!!! </strong></em>deejhttp://www.blogger.com/profile/05088224979219806756noreply@blogger.com0