On a ROLL

Hey Desperate Housebounds! Guess what my 4th of July fireworks are this year? I'm getting Tysabri #12! Wee! But there will be no ANNUAL REVIEW at that time. It's a chronological thing, not the # of Tysabri infusions. Go figure! I wonder how many meetings it took for Tysabri Headquarters to decide that? Be aware that this Annual Review is required for continuing Tysabri infusions. Kinda sounds like "Mother may I?"

Still Alive & WELL?

I survived my epidural, but no big shakes from that. Just 80 mg of Depomedrol, a little bit of THIS to make me relaxed & sleepy like Dwarf Dopey. A little bit of THAT to prevent infection, as I'm on Tysabri & my immune system is suppressed (oh really?). The best thing about this ordeal was the soda I got while "recovering". I can try another epidural halfway between my next 2 Tysabri infusions (don't want to confuse myself). Ha! Is this called "self-medicating"-? I don't know if my 30-year-old back injury will "wake up and smell the roses", i.e. behave like a normal back & hold me up straight. If not, then it may just be the MS. Huh--what a discovery! It's about time for discoveries! Are you listening TYSABRI? Don't hold out on me NOW!

Continuing Coverage

Don't touch that dial(computer key)! Or your Post will Vanish! Whew! Here today, gone Tysabri! Progress in the midst of Tysabri = I can make it to the bathroom without having an accident! Big Deal! That's how I'm SUPPOSED to function, am I due to thank Tysabri for that? Huh! Where's the SIGNIFICANT progress? Am I supposed to be grateful for breadcrumbs when the medicine is costing me an ARM and a LEG? Huh again! You can't see me turning my nose up and hobbling away. Biogen/Elan is making a MINT on me! Do you think they would send even a HINT of THANKS for my support? Huh! No free meals with them!

Epidurals, Here I Come!

Hey! I'm still alive after that epidural! 80 mg of Depomedrol, plus a little something to relax me (made me like Dwarf Dopey, and a little something to help prevent infection (since I'm on Tysabri my immune system is being suppressed). I'm in heaven! I'm standing up straight for more than a minute! I'm brushing my teeth & putting on make-up without having to sit down! OK, now, hold you horses -- this result isn't happening Yet, but this is the Anticipated Outcome! Keep your fingers crossed for me please

DID ANYONE GET THE 6th MONTH TYSABRI REVIEW YET? The first question on the form(to the doctor) = Is the patient still ALIVE? My doc & I got a laugh out of that! Whew!

Posting till the Cows Come Home

I guess I should make some more "posts" instead of commenting to the comments. Not used to this blog stuff. I'm impatience incorporated. I don't have to wait an hour after my infusion anymore. I don't have to patiently sit while I'm asked the same questions before I can get my infusion. I guess the same info. is asked of me informally now (don't remember the questions). I had to coordinate the infusion nurse with my neuro. after I had Prednisolone IV for a flare-up; otherwise I wouldn't have gotten my Tysabri. See? You have to BE well to GET well! Good luck to all those out there in Tysabri Land! There's nothing to be afraid of after you passs the 3rd month and are over the risk of an allergic reaction.

Blogger: Tysabri - Post a Comment

Blogger: Tysabri - Post a Comment

Help Me! Help Me! I'm on Tysabri!

Welcome...your call may be monitored to insure you receive the highest quality of service. Please listen carefully to the menu options: Press 1 to receive full prescribing info. This will take 10 min. & you won't end up knowing anything more than you already know. Press 2 to hear the Black Box warning. This scares the hell out of you. Press 3 to talk to a live body, no matter what their title is, they are just an office clerk, who will put you on hold, then return in a couple minutes, saying they CANNOT HELP YOU & you should ask your doctor. (Been there, done that.) My doctor has a similar complaint when he calls. Where is the REAL Help Line for this medicine? I am out alone in the world of Tysabri. Help!