12/28/10

Happy Holidays

Happy Holidays and CCSVI Treatment to ALL that Need it -- this will FREE YOU from Many of your MS symptoms. Do you realize you've had this CCSVI condition since your Birth? The Neurologists don't know about this except Dr. Hubbard of San Diego -- ask an Interventional Radiologist who specials in Veins...

11/23/10

CCSVI - Do Ya Wanna Know What it is?

This is a lenghty, but informative interview with a neuro for ALL people with MS: http://www.komonews.com/home/video/106175483.html

CCSVI - Liberation and MORE

Hi EVERYONE - ! Sorry I have Not Posted Here for 3 months -- WOW-!! The World has Changed for me since I went to San Diego to get my CCSVI treatment...I came back with a UTI because I have to travel long distances with a catheter. This may have impacted the results of my treatment. I had Good Things Happen but they slowly faded after several weeks. I now have minimal improvements come & go that I did NOT have before. I was told that this has happened to othewrs. Since I've had MS for so long, I'm looking forward to my next CCSVI treatment. Dr. Hubbard had an interview with the Seattle news. Two MS patients from Seattle came to San Diego for CCSVI testing, then treatment at the Del Mar clinic. Because of this, a Seattle newsman gave Dr. Hubbard a lengthy interview on what CCSVI is and how it shows that some of our MS symptoms can be Improved and/or "fixed" because the symptoms are VASCULAR. This is a Breakthru and I believe ALL people with MS should be TESTED for CCSVI. If tests show they have this condition, the treatment is a selection of existing procedures that are Already Being Used for Other People with Other Problems in their veins.

8/18/10

Oh Boy--Oh Boy--Oh Boy-!!! I cannot Wait until I get treated for my clogged/blocked veins--MS symptoms will Improve like NONE of the Drugs ever could do--!! Thirty-three years of Suffering & NOW I have Real Hope-!! I know I won't be 100% free of MS, but ANY IMPOVEMENT will be So Welcomed--!!

8/7/10

More about My Testing for CCSVI

Update: I had MRI & MRV testing for blocked/clogged veins on 8/5/10 at Hubbard in San Diego. I'll wait now a couple weeks for test results. Info. is all over the Internet, Facebook, YouTube, etc. from many countries. Wow-!

7/5/10

CCSVI More Good News

I have been researching CCSVI, where to get tested & get the Liberation Procedure done. Since I live in Arizona, it looks like Clinics of the Heart with Dr. Rafael Moguel in Cabo San Lucas, Mexico will be best for me. Not sure of details yet (cost,etc.) but there was already a trial of 10 MSers & all had successive outcomes. ***Good Luck to All***

7/2/10

CCSVI

Is this a CURE for MS-?? WOW-!! See the NY Times article. They will start testing in Atlanta on 7/15. Check around you to get Testedto see if you qualify tor this Cure. YAAYY--!!!!!!!

6/14/10

There is Gloom and Bloom in JUNE

Hello out there -- how are things going with everybody? I'm still waiting to try AMPYRA to help my walking. I know it is expensive & it only helps 40% of people who try it, but hey, it's a PILL, how EASY is THAT? There goes Mother's Day, here comes Father's Day, Graduations galore, BBQs, etc. etc. WAIT!! "Hold onto your horses" and don't Overdo It -- take a break, drink fluids, stay cool, be Good to Yourself. Big Announcement = CUPCAKES for EVERYONE-!! I just received Tysabri Infusion #48 = 4 YEARS on a medicine that did NOT throw me into the Donut Hole because it's under Medicare Part B. Also, Tysabri is overpriced, but I notified "the powers that be" and if they Do Nothing, I wash my hands of the issue. I cannot "fight the good fight" any more = lack of energy. Tysabtri has NOT been costing me anything, except for monthly payments to Medicare & my supplemental insurance, which I would be paying anyway. You would think that I would get a questionnaire wanting to know if I feel better on Tysabri, if I'm CURED, but NO, nobody holding the Purse Strings Cares. Hmmm... Until Next Time.

4/19/10

No More SPAM

Not sure what I DID, but No More SPAM--!! Coming up to 4 years on Tysabri--NO, I'm not scared of getting PML. Waiting to try AMPYRA to help my Walking--Bring It On--PLEASE!!

Earth Day

Hi folks, I'm asking bloggers to take a break for EarthDay this year. Just Do One Thing, as they say, to promote a positive influence on Mother Earth. Getting "Outside Yourself" for awhile always helps me to put aside my problems and feel grateful for the Positve Things in my life. As an example, I cut apart the plastic "loops" that hold a six-pack of cans together, before throwing it in the trash. This prevents critters from getting caught in the "loops" when this trash is deposited in the landfill.

2/21/10

SPAM

I'm starting to get SPAM in my comment section of my blog. Please excuse any GROSS or offending comments--I am trying to figure out how to stop it. I may have to close out my blog.

2/11/10

It's a New Year

I'm still getting Tysabri every month at the local hospital. Just had infusion #44. I am recovering from back surgery so not sure which symptoms are from the surgery & which are MS. I'm doing P.T. twice a week and it's a Good thing to do. I use a scooter to get around in the house, but I can also walk SLOWLY with a walker short distances. I have been retired on disability for a few years now. I wish the best for everyone. Happy Valentine's Day.