4/11/08

Always Look Forward, Don't Look Back!

I've had some Good News! After being on Tysabri for almost 2 years, I was told I should have a "Neutralizing Antibodies" test for Tysabri. If I come up Positive, then Tysabri is NOT working for me. The local lab took my blood, then they had to let it sit for 30 min., then put it in a centrifuge. Then they had to ship my blood sample packed in ice to Athena Diagnostics in Massachusetts within 48hrs. Wow! My test results were Negative, YaYaYa!!! So on I go with Tysabri!

3/17/08

Still Here & Doing Better!

Hi to all you bloggers that may pass my way...when I don't write anything here, it's because 1) I don't feel well, 2) I'm feeliing Very Well & am out in the world doing things! Well, this time it is #2. I'm feeling So Well, I forgot about my blogs! Maybe it's because I just closed the deal on a new house! I suddenly feel energized & excited about it! On another note: I'm changing my Tysabri infusion site. For over a year, my dear husband had drive 2 hours south to Phoenix. Now the hospital in northern AZ is starting to give Tysabri to patients, so a Big Thanks to Them! Remember folks, if you want to change your infusion site, you must call Tysabri headquarters (800-456-2255). They will assign you a Case Manager, who will make sure the new infusion site is certified in the "Touch" program, to administer Tysabri. Happy Easter!

1/8/08

Going down a good path!

Happy New Year to all! I can't believe I haven't blogged here for so long! When I feel better I get absorbed with so many things that "well people" take for granted. My Christmas decorating took extra long this year, but at least I felt like doing it. My dear husband helped out and gave me the encouragement I always need. The best Christmas present is going down a path to feeling better! My 19th infusion of Tysabri is next week & I'm looking forward to it!

11/23/07

Tysabri is NOT a turkey!

Tysabri continues to show it's GOOD side--it is the Best Medicine for ME! I've had MS for at least 30 years and have tried MANY medicines. I've been taking Tysabri for 1 and 1/2yrs. now, and there's always a nice surprise after I get my monthly infusion. Early this week I drove 2 hours to Phoenix, got my shot, came back home to see my brother installing cabinets for me in the laundry room! What a nice surprise! The other surprise I got was my spastic bladder calmed down & I was able to travel and enjoy visitors & good food without having bathroom emergencies or accidents. Tysabri is doing it's thing--no turkeys here!

10/6/07

Tremors be GONE!

I just want to send out a positive signal I got that Tysabri is doing something GOOD. I recall my handwriting getting really bad in 1992. I could no longer write, just print letters slowly as I held my tremoring right hand with the other. It was awful as I was still working & needed my handwriting. Over the years I had to give up many things, like not writing checks. It also meant not writing personal cards & letters to people I loved. I missed my non-tremor hands so much! When I first started Tysabri a year ago, my handwriting improved to the point that I could address my X-mas cards & even print short notes! The tremors had stopped! Wow, that was the best present I got for X-mas! But it didn't last long. And NOW, since I've reached my one-year-mark with Tysabri, my handwriting is coming back again! What a blessing! I'm happy with any improvement no matter how small, and of course I want more & more!