Treatment for CCSVI is happening NOW all over the World... the stories I've heard of patient improvements are miraculous! Hurry CCSVI treatment! Bring back The Good Times for Me! Make it available to ALL MSers!
4/11/08
Always Look Forward, Don't Look Back!
I've had some Good News! After being on Tysabri for almost 2 years, I was told I should have a "Neutralizing Antibodies" test for Tysabri. If I come up Positive, then Tysabri is NOT working for me. The local lab took my blood, then they had to let it sit for 30 min., then put it in a centrifuge. Then they had to ship my blood sample packed in ice to Athena Diagnostics in Massachusetts within 48hrs. Wow! My test results were Negative, YaYaYa!!! So on I go with Tysabri!
3/17/08
Still Here & Doing Better!
Hi to all you bloggers that may pass my way...when I don't write anything here, it's because 1) I don't feel well, 2) I'm feeliing Very Well & am out in the world doing things! Well, this time it is #2. I'm feeling So Well, I forgot about my blogs! Maybe it's because I just closed the deal on a new house! I suddenly feel energized & excited about it! On another note: I'm changing my Tysabri infusion site. For over a year, my dear husband had drive 2 hours south to Phoenix. Now the hospital in northern AZ is starting to give Tysabri to patients, so a Big Thanks to Them! Remember folks, if you want to change your infusion site, you must call Tysabri headquarters (800-456-2255). They will assign you a Case Manager, who will make sure the new infusion site is certified in the "Touch" program, to administer Tysabri. Happy Easter!
1/8/08
Going down a good path!
Happy New Year to all! I can't believe I haven't blogged here for so long! When I feel better I get absorbed with so many things that "well people" take for granted. My Christmas decorating took extra long this year, but at least I felt like doing it. My dear husband helped out and gave me the encouragement I always need. The best Christmas present is going down a path to feeling better! My 19th infusion of Tysabri is next week & I'm looking forward to it!
11/23/07
Tysabri is NOT a turkey!
Tysabri continues to show it's GOOD side--it is the Best Medicine for ME! I've had MS for at least 30 years and have tried MANY medicines. I've been taking Tysabri for 1 and 1/2yrs. now, and there's always a nice surprise after I get my monthly infusion. Early this week I drove 2 hours to Phoenix, got my shot, came back home to see my brother installing cabinets for me in the laundry room! What a nice surprise! The other surprise I got was my spastic bladder calmed down & I was able to travel and enjoy visitors & good food without having bathroom emergencies or accidents. Tysabri is doing it's thing--no turkeys here!
10/6/07
Tremors be GONE!
I just want to send out a positive signal I got that Tysabri is doing something GOOD. I recall my handwriting getting really bad in 1992. I could no longer write, just print letters slowly as I held my tremoring right hand with the other. It was awful as I was still working & needed my handwriting. Over the years I had to give up many things, like not writing checks. It also meant not writing personal cards & letters to people I loved. I missed my non-tremor hands so much! When I first started Tysabri a year ago, my handwriting improved to the point that I could address my X-mas cards & even print short notes! The tremors had stopped! Wow, that was the best present I got for X-mas! But it didn't last long. And NOW, since I've reached my one-year-mark with Tysabri, my handwriting is coming back again! What a blessing! I'm happy with any improvement no matter how small, and of course I want more & more!
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