6/14/10

There is Gloom and Bloom in JUNE

Hello out there -- how are things going with everybody? I'm still waiting to try AMPYRA to help my walking. I know it is expensive & it only helps 40% of people who try it, but hey, it's a PILL, how EASY is THAT? There goes Mother's Day, here comes Father's Day, Graduations galore, BBQs, etc. etc. WAIT!! "Hold onto your horses" and don't Overdo It -- take a break, drink fluids, stay cool, be Good to Yourself. Big Announcement = CUPCAKES for EVERYONE-!! I just received Tysabri Infusion #48 = 4 YEARS on a medicine that did NOT throw me into the Donut Hole because it's under Medicare Part B. Also, Tysabri is overpriced, but I notified "the powers that be" and if they Do Nothing, I wash my hands of the issue. I cannot "fight the good fight" any more = lack of energy. Tysabtri has NOT been costing me anything, except for monthly payments to Medicare & my supplemental insurance, which I would be paying anyway. You would think that I would get a questionnaire wanting to know if I feel better on Tysabri, if I'm CURED, but NO, nobody holding the Purse Strings Cares. Hmmm... Until Next Time.

4/19/10

No More SPAM

Not sure what I DID, but No More SPAM--!! Coming up to 4 years on Tysabri--NO, I'm not scared of getting PML. Waiting to try AMPYRA to help my Walking--Bring It On--PLEASE!!

Earth Day

Hi folks, I'm asking bloggers to take a break for EarthDay this year. Just Do One Thing, as they say, to promote a positive influence on Mother Earth. Getting "Outside Yourself" for awhile always helps me to put aside my problems and feel grateful for the Positve Things in my life. As an example, I cut apart the plastic "loops" that hold a six-pack of cans together, before throwing it in the trash. This prevents critters from getting caught in the "loops" when this trash is deposited in the landfill.

2/21/10

SPAM

I'm starting to get SPAM in my comment section of my blog. Please excuse any GROSS or offending comments--I am trying to figure out how to stop it. I may have to close out my blog.

2/11/10

It's a New Year

I'm still getting Tysabri every month at the local hospital. Just had infusion #44. I am recovering from back surgery so not sure which symptoms are from the surgery & which are MS. I'm doing P.T. twice a week and it's a Good thing to do. I use a scooter to get around in the house, but I can also walk SLOWLY with a walker short distances. I have been retired on disability for a few years now. I wish the best for everyone. Happy Valentine's Day.