More about My Testing for CCSVI

Update: I had MRI & MRV testing for blocked/clogged veins on 8/5/10 at Hubbard in San Diego. I'll wait now a couple weeks for test results. Info. is all over the Internet, Facebook, YouTube, etc. from many countries. Wow-!

CCSVI More Good News

I have been researching CCSVI, where to get tested & get the Liberation Procedure done. Since I live in Arizona, it looks like Clinics of the Heart with Dr. Rafael Moguel in Cabo San Lucas, Mexico will be best for me. Not sure of details yet (cost,etc.) but there was already a trial of 10 MSers & all had successive outcomes. ***Good Luck to All***

CCSVI

Is this a CURE for MS-?? WOW-!! See the NY Times article. They will start testing in Atlanta on 7/15. Check around you to get Testedto see if you qualify tor this Cure. YAAYY--!!!!!!!

There is Gloom and Bloom in JUNE

Hello out there -- how are things going with everybody? I'm still waiting to try AMPYRA to help my walking. I know it is expensive & it only helps 40% of people who try it, but hey, it's a PILL, how EASY is THAT? There goes Mother's Day, here comes Father's Day, Graduations galore, BBQs, etc. etc. WAIT!! "Hold onto your horses" and don't Overdo It -- take a break, drink fluids, stay cool, be Good to Yourself. Big Announcement = CUPCAKES for EVERYONE-!! I just received Tysabri Infusion #48 = 4 YEARS on a medicine that did NOT throw me into the Donut Hole because it's under Medicare Part B. Also, Tysabri is overpriced, but I notified "the powers that be" and if they Do Nothing, I wash my hands of the issue. I cannot "fight the good fight" any more = lack of energy. Tysabtri has NOT been costing me anything, except for monthly payments to Medicare & my supplemental insurance, which I would be paying anyway. You would think that I would get a questionnaire wanting to know if I feel better on Tysabri, if I'm CURED, but NO, nobody holding the Purse Strings Cares. Hmmm... Until Next Time.

No More SPAM

Not sure what I DID, but No More SPAM--!! Coming up to 4 years on Tysabri--NO, I'm not scared of getting PML. Waiting to try AMPYRA to help my Walking--Bring It On--PLEASE!!