Push Tysabri to it's MAX-!! And when all else FAILS--

I HAVE FINISHED MY EXPERIMENTATION and HAVE FINALLY ARRIVED at the COMFORTABLE RESPITE of letting the SOLUMEDROL kick in and do its work to REDUCE INFLAMMATION. I have been waiting for 2 months to go on the traditional MS Replapse routine of 3 days of 1,000mg of Solumedrol/each day, then taper of on prednisone pills for 10 days. When all else FAILS and you keep getting worse, this is the BEST thing to TRY! It works for ME! I have been on Tysabri for a year now, but the progression of my MS is still going on, tho maybe not as fast. This is the 2nd replapse I've had while on Tysabri(Relapse, of course, means NEW or recurring symptoms for more than 24hrs.) I waited for 2 months before treating this Relapse, because I was in the middle of some experiments: I revised my P.T. exercises in May, as I had been doing the same ones for 3 years & my abilities have changed. Also, I tried a chiropractic treatment to see if it would help any MS symptoms, mainly my ability to stand/walk. After 5 treatments, the doc & I decided NO. The 3rd & last experiment was a couple epidurals to my lower back. I have no disabling pain, but it could help MOBILITY. The epidurals made me "loose as a goose" and it became HARDER, not easier, for me to stand. So those 3 experiments are done & I'm off to investigate another course of action as I wait for Tysabri to show something. Hope this info. is of some use to those afflicted with this bothersome "monkey on our backs". Now I need to rest & let my Adrenals recover & kick back in. Potassium, Calcium & D will help (but try to avoid salt)! Eternal Energy to all!

The Touch of Tysabri

Is IT helping me or am I just in remission? I can't tell, so I will keep on taking it. After all, I've had MS much longer than I've been on this new drug. The Touch of Tysabri is different for all people who try it. But the main suggestion is to Try It and don't be afraid!

Keep On Keepin' On!

I just got Tysabri #13, a good way to close out the month! I'd say thirteen is a Good Luck number for me. Maybe I can't stand up and shout about it, but it sure is the best for me & the MS Monster! I'll kick it's Can yet! Just a once-a-month infusion for an hour and I'm good to go. No side effects either. I'm going to Keep On Keepin' On...take a walk on the Wild Side and try it--it's a Keeper!

You can WIN with Tysabri

As you can see, I'm a hyper-critical blogger. Everything has to be Perfect to make me happy. Well, that's one of my faults. I don't want to discourage anyone from trying Tysabri. It's the Best Thing Yet for anyone that's bothered by MS. Even if you are NOT bothered by MS, there is still damage going on. I have had NO side effects with Tysabri. I've been on Tysabri almost one year now. My insurance (Medicare plus a Supplemental) is paying & it hasn't cost me $$$. That's a Big Success for me! Don't get me wrong, just 'cuz I'm on Medicare, doesn't mean I'm a Senior--I'm in my early 50's. I'm sorry to be out of the work world on disability. I miss the social interactions, but the freedoms I enjoy every morning I wake up are such a blessing! I may not be able to jog around my neighborhood, but I have exercises to do every day to keep me as strong as can be. I can still walk with the aid of a walker, but in my dreams I am as normal as can be! I'm suddenly inspired by a song by Kansas: "Carry on my wayward son, there'll be peace when you are done..." Good times to All!

Tysabri Blogs Itself

Hey out there--what's the Newest? I found out that while on Tysabri, you may develop "Persistently Positive Antibodies". In this case, Tysabri will stop working for you. These "antibodies are proteins made by the body to help fight against foreign invaders" -- your body thinks Tysabri is a Foreign Invader (like bacteria & viruses). This info. is NOT in the Patient Medication Guide, that you get before every monthly infusion. This info. is in a booklet called "Getting Started with Tysabri" that Biogen mailed to me, not knowing I've already been on Tysabri for many months. Why doesn't Biogen include this info. in the Patient Medication Guide, which has been the SAME since I started receiving it almost a year ago-? Oh, well, I guess you can call it one more of the persistent OVERSIGHTS that Biogen is guilty of.