Treatment for CCSVI is happening NOW all over the World... the stories I've heard of patient improvements are miraculous! Hurry CCSVI treatment! Bring back The Good Times for Me! Make it available to ALL MSers!
5/13/08
Take the Best for your MS
My advice to all MSers is to please research & try all available medications for MS. Meds work in dfferent ways for different people. Right now I'm trying to figure out which of my symptoms are MS symptoms & which are from a 30yr. old back injury. Even the docs are having problems doing this. But they both agreed I should have another lumbar epidural done, so away I go! More later, good luck to all!
4/11/08
Always Look Forward, Don't Look Back!
I've had some Good News! After being on Tysabri for almost 2 years, I was told I should have a "Neutralizing Antibodies" test for Tysabri. If I come up Positive, then Tysabri is NOT working for me. The local lab took my blood, then they had to let it sit for 30 min., then put it in a centrifuge. Then they had to ship my blood sample packed in ice to Athena Diagnostics in Massachusetts within 48hrs. Wow! My test results were Negative, YaYaYa!!! So on I go with Tysabri!
3/17/08
Still Here & Doing Better!
Hi to all you bloggers that may pass my way...when I don't write anything here, it's because 1) I don't feel well, 2) I'm feeliing Very Well & am out in the world doing things! Well, this time it is #2. I'm feeling So Well, I forgot about my blogs! Maybe it's because I just closed the deal on a new house! I suddenly feel energized & excited about it! On another note: I'm changing my Tysabri infusion site. For over a year, my dear husband had drive 2 hours south to Phoenix. Now the hospital in northern AZ is starting to give Tysabri to patients, so a Big Thanks to Them! Remember folks, if you want to change your infusion site, you must call Tysabri headquarters (800-456-2255). They will assign you a Case Manager, who will make sure the new infusion site is certified in the "Touch" program, to administer Tysabri. Happy Easter!
1/8/08
Going down a good path!
Happy New Year to all! I can't believe I haven't blogged here for so long! When I feel better I get absorbed with so many things that "well people" take for granted. My Christmas decorating took extra long this year, but at least I felt like doing it. My dear husband helped out and gave me the encouragement I always need. The best Christmas present is going down a path to feeling better! My 19th infusion of Tysabri is next week & I'm looking forward to it!
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