First of all, today is Sept. 11th and I need to say this:
God Bless all those affected so deeply & personally by the 9-11 tragedy.
Today is a special day of Remembrance & my thoughts & prayers are with you.
On another note, the purpose of my blog is Tysabri, so here's the latest: I've been on Tysabri a year. With all the positive remarks I've read from users, I thought I'd be experiencing more "miracle improvements" by now. As I wait, there are small miracles I'm grateful for: Tysabri is the EASIEST drug I've ever used for MS (I won't say "my MS" because I don't claim ownership; MS is an Outside Invader). Why is it so easy? 1. My health insurance pays for it, 2. it is only a once a month infusion, and 3. I don't feel any negative side effects. Plus, when I realize that I've had MS for 30 years, it's gonna take some time for any medicine to put the brakes on the "runaway criminal" that's on the loose in my body! So there! Hope is eternal! P.S. I had 10 great days where I felt on the road to recovery! A "fog" had lifted and I was interested in the same Un-Sick things that Un-Sick people are! Hope it returns SOON & stays with me longer!
3 comments:
Hi there Dee,
I too have been on Tysabri therapy for a year with my 12th infusion been on 9/5, with my 13th due on 10/3 (so in effect, I will have had 13 infusions from my re-starting date of October 16, 2006).
Like you Dee, I get that MS for a very long time (for 31 plus years), and if Tysabri continues to keep my MS stable, I am thrilled! Any improvements that I might have (whether slight, temporary, or permanent) I consider just icing on the cake. One thing Ty has that none of the other MS medications have is the word HOPE attached to it, and I'll take that attachment any day of the week :D
Love your attitude Dee, keep up the great comments on your blog!
Many, many hugs dearheart,
Lauren :)
just found your blog. i am doing my second infusion this friday, after three years of rebif. i'm not expecting any miracles, except a halt to the progression of the disease, which will be miracle enough for me.
Hi Deb, I have not heard from you in a bit, and decided to check in to see how you were doing.
I hope all is good, take care and keep on fighting!
www.pafundi.com
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