Tremors be GONE!

I just want to send out a positive signal I got that Tysabri is doing something GOOD. I recall my handwriting getting really bad in 1992. I could no longer write, just print letters slowly as I held my tremoring right hand with the other. It was awful as I was still working & needed my handwriting. Over the years I had to give up many things, like not writing checks. It also meant not writing personal cards & letters to people I loved. I missed my non-tremor hands so much! When I first started Tysabri a year ago, my handwriting improved to the point that I could address my X-mas cards & even print short notes! The tremors had stopped! Wow, that was the best present I got for X-mas! But it didn't last long. And NOW, since I've reached my one-year-mark with Tysabri, my handwriting is coming back again! What a blessing! I'm happy with any improvement no matter how small, and of course I want more & more!

Count the UPs not the DOWNs

First of all, today is Sept. 11th and I need to say this:
God Bless all those affected so deeply & personally by the 9-11 tragedy.
Today is a special day of Remembrance & my thoughts & prayers are with you.

On another note, the purpose of my blog is Tysabri, so here's the latest: I've been on Tysabri a year. With all the positive remarks I've read from users, I thought I'd be experiencing more "miracle improvements" by now. As I wait, there are small miracles I'm grateful for: Tysabri is the EASIEST drug I've ever used for MS (I won't say "my MS" because I don't claim ownership; MS is an Outside Invader). Why is it so easy? 1. My health insurance pays for it, 2. it is only a once a month infusion, and 3. I don't feel any negative side effects. Plus, when I realize that I've had MS for 30 years, it's gonna take some time for any medicine to put the brakes on the "runaway criminal" that's on the loose in my body! So there! Hope is eternal! P.S. I had 10 great days where I felt on the road to recovery! A "fog" had lifted and I was interested in the same Un-Sick things that Un-Sick people are! Hope it returns SOON & stays with me longer!

Push Tysabri to it's MAX-!! And when all else FAILS--

I HAVE FINISHED MY EXPERIMENTATION and HAVE FINALLY ARRIVED at the COMFORTABLE RESPITE of letting the SOLUMEDROL kick in and do its work to REDUCE INFLAMMATION. I have been waiting for 2 months to go on the traditional MS Replapse routine of 3 days of 1,000mg of Solumedrol/each day, then taper of on prednisone pills for 10 days. When all else FAILS and you keep getting worse, this is the BEST thing to TRY! It works for ME! I have been on Tysabri for a year now, but the progression of my MS is still going on, tho maybe not as fast. This is the 2nd replapse I've had while on Tysabri(Relapse, of course, means NEW or recurring symptoms for more than 24hrs.) I waited for 2 months before treating this Relapse, because I was in the middle of some experiments: I revised my P.T. exercises in May, as I had been doing the same ones for 3 years & my abilities have changed. Also, I tried a chiropractic treatment to see if it would help any MS symptoms, mainly my ability to stand/walk. After 5 treatments, the doc & I decided NO. The 3rd & last experiment was a couple epidurals to my lower back. I have no disabling pain, but it could help MOBILITY. The epidurals made me "loose as a goose" and it became HARDER, not easier, for me to stand. So those 3 experiments are done & I'm off to investigate another course of action as I wait for Tysabri to show something. Hope this info. is of some use to those afflicted with this bothersome "monkey on our backs". Now I need to rest & let my Adrenals recover & kick back in. Potassium, Calcium & D will help (but try to avoid salt)! Eternal Energy to all!

The Touch of Tysabri

Is IT helping me or am I just in remission? I can't tell, so I will keep on taking it. After all, I've had MS much longer than I've been on this new drug. The Touch of Tysabri is different for all people who try it. But the main suggestion is to Try It and don't be afraid!

Keep On Keepin' On!

I just got Tysabri #13, a good way to close out the month! I'd say thirteen is a Good Luck number for me. Maybe I can't stand up and shout about it, but it sure is the best for me & the MS Monster! I'll kick it's Can yet! Just a once-a-month infusion for an hour and I'm good to go. No side effects either. I'm going to Keep On Keepin' On...take a walk on the Wild Side and try it--it's a Keeper!